Joanie Scott is the recipient of The Robin Tavistock Award 2017

The Tavistock Trust for Aphasia recognises and honours carers


Joanie Scott right with husband John and daughter Sarah

Joanie Scott with husband John and daughter Sarah.

The Trustees of The Tavistock Trust for Aphasia are delighted to announce that Joanie Scott is the 2017 recipient of The Robin Tavistock Award, and she accepts this Award, not only on her behalf, but also representing all those who care for people with aphasia.

This Award is named after Robin Tavistock, the 14th Duke of Bedford, who founded The Tavistock Trust for Aphasia. It was created in 2006, to be given annually to a person or group who is inspiring and who has made a significant contribution to the world of aphasia.

This year the Trustees want to recognise a specific group of people – the people who love, support and care for people with aphasia, but who are often in the background. These are people who, like many with aphasia, are often hidden and unsung heroes, but whose stories are inspiring.

More importantly, over the years carers have, collectively, made the greatest and most significant contribution to the aphasia world.

It is not possible to acknowledge each and every person and we are delighted that Joanie Scott has agreed to accept the Award this year, on her behalf and on behalf of those, past and present, who have dedicated themselves to caring for someone with aphasia.

Joanie would say that she has only done what any loving mother would do but what makes her stand out is that she has gone ‘above and beyond’, not only helping her daughter but also others with aphasia.

In 2009, at the age of 18, Joanie’s daughter Sarah had a stroke and has aphasia. With the love and support of her mother, her father John and her sister Coralie, as well as many hours of speech and language therapy, she slowly but surely made a remarkable recovery.

Right from the start, Joanie and Sarah thought not only of themselves, but also of helping the wider community. Together they made a series of YouTube videos that are designed to describe aphasia and give hope to those who are going through what they’ve experienced. These videos have had approximately a million and a half views to date, and are used in universities around the world to help train medical professionals.

Joanie and Sarah have established an aphasia and stroke self help group in their locality, which still thrives today. They have also made numerous television and radio appearances, raising the profile of aphasia.

Sarah is now leading a full and increasingly independent life. Instead of taking a well-earned rest, and despite the fact that she too suffered a stroke in 2011, Joanie continues to be involved in the aphasia world, trying to support others wherever possible.

Joanie still works with a number of organisations, always trying to raise the profile of aphasia, particularly through the use of social media. She has spoken at conferences both in the UK and abroad, as well as in schools and businesses. She actively keeps abreast of current developments in aphasia research and is always looking for opportunities to support those who are living with aphasia.

The Tavistock Trust for Aphasia believes it is time to honour carers, to recognise those who are not professionals but who contribute so much to the well being of people with aphasia. We are delighted that Joanie Scott, on behalf of the many hidden heroes, is the recipient of The Robin Tavistock Award 2017.